Well I just read that last post and it seems like a different person writing it. It is only 4 months later now but I feel so good!
I think it is because my progression is rapid now and each day makes a huge difference. I now feel very positive and happy. I suppose I should do a general update:
My bloods are great as are my bone marrow biopsies which show 100% donor cells and chimerism. The doctors call it a fully transplanted marrow! Woop!
I've had a few small battles which are that it has been confirmed that my ovaries are completely inactive. This is obviously sad news but I was expecting it and feel that I have dealt ith that as best I can in my mind over the last few years. The negative side of this is the menopause and the awful symptoms I was having, mostly the constant crying! I am now on HRT and I can honestly say it is amazing. I don't have any of those symptoms anymore and feel like a big black cloud has been lifted from my head.
The other not so good thing is the sore muscles/aches I have. They can be very painful but my Osteo things it is temporary. Docs are sending me for a dexa scan to check my bones but they do that for transplant patients anyway. If they have lost density they'll give me a tablet to take, so not too bad plus the HRT is obviously there to help this too.
So basically I am just getting on with life now. I am doing a dressmaking course, 2hrs on a Thursday evening which I love and I am starting a certificate in fundraising course to expand my skills for work.
I am also getting fitter and am doing weight watchers to lose this excess weight I've put on over the last 15months.
All positive things I think. I made the decision a while ago that I don't want to be sad and down anymore and think that I am going through this horrendous nightmare. The truth is now that I have been through it, I've come out the other side and that is just wonderful really.
It is time to move on, which is what I have been doing, even to the extent of de-cluttering my wardrobe and house! It feels good and feel good. i will never forget or lose sight of what I've been through and i know i am still recovering and have to take tablets and have check ups etc for years. However I am looking forward now and I can agree with the doctors and say I am we'll and able to move on.
Congrats Sveness! So glad to hear you have had a good outcome to all this full-on medical treatment. Best wishes from an Australian Psycho-Oncologist, browsing blogs to find good ones to recommend to clients....
ReplyDeletehi ,
ReplyDeleteits great that you are feeling good now after the treatments..take care.
bone marrow transplant
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ReplyDeleteThank you so much for your frank & honest blog. I've just been referred to Kings with hypocellular bone marrow & am devouring any information I can on the subject!
ReplyDeleteSo glad to hear you are well.
Another great article. I like that you are very honest and direct to the point.
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Surgical instruments
Why is a bone marrow transplant needed? Why it a very important to you? The goal of a bone marrow transplant is to cure many diseases and types of cancer. Thanks Sveness for value information and experience that you share it here. Very impressed! That is a great article. Honestly and straight to the point. ;)
ReplyDeleteReally informative post as ever, however if you need any more info about Bone Marrow Transplant, you can rely on this website: india4health.com
ReplyDeleteKeep it up anyway!