I think it is because my progression is rapid now and each day makes a huge difference. I now feel very positive and happy. I suppose I should do a general update:
My bloods are great as are my bone marrow biopsies which show 100% donor cells and chimerism. The doctors call it a fully transplanted marrow! Woop!
I've had a few small battles which are that it has been confirmed that my ovaries are completely inactive. This is obviously sad news but I was expecting it and feel that I have dealt ith that as best I can in my mind over the last few years. The negative side of this is the menopause and the awful symptoms I was having, mostly the constant crying! I am now on HRT and I can honestly say it is amazing. I don't have any of those symptoms anymore and feel like a big black cloud has been lifted from my head.
The other not so good thing is the sore muscles/aches I have. They can be very painful but my Osteo things it is temporary. Docs are sending me for a dexa scan to check my bones but they do that for transplant patients anyway. If they have lost density they'll give me a tablet to take, so not too bad plus the HRT is obviously there to help this too.
So basically I am just getting on with life now. I am doing a dressmaking course, 2hrs on a Thursday evening which I love and I am starting a certificate in fundraising course to expand my skills for work.
I am also getting fitter and am doing weight watchers to lose this excess weight I've put on over the last 15months.
All positive things I think. I made the decision a while ago that I don't want to be sad and down anymore and think that I am going through this horrendous nightmare. The truth is now that I have been through it, I've come out the other side and that is just wonderful really.
It is time to move on, which is what I have been doing, even to the extent of de-cluttering my wardrobe and house! It feels good and feel good. i will never forget or lose sight of what I've been through and i know i am still recovering and have to take tablets and have check ups etc for years. However I am looking forward now and I can agree with the doctors and say I am we'll and able to move on.
